2016 BHOP Summer Newsletter

Happy summer!

The Avon Breast Cancer Crusade contracts with CAI to direct the Avon Breast Health Outreach Program (Avon BHOP) and manage the data reporting for their Safety Net Grantees. Here is a quick update on recent happenings at the Avon BHOP Coordinating Center and at the Avon Breast Cancer Crusade:

2017 BHOP Funding:  The 2017 RFA has been released with a deadline for applications on August 19, 2016. Click here to access the Grant Application.  

Avon BHOP Staff Changes:  We are pleased to announce our newest Avon BHOP Project Officer – Kennedy Willis, MA, who started on June 7 and will be based in CAI’s NYC office. Kennedy’s email address is kwillis@caiglobal.org. Karin Bauer has moved to Seattle and will continue to work part-time on the project. Her focus will primarily be on research and evaluation.

Avon Breast Cancer Crusade Staff Addition:  Dana Huber, Program Officer, joined the Avon Breast Cancer Crusade team in early 2016.  She is based in NYC and works closely with the CAI team. Her email address is dana.huber@avonbcc.org.

2016 Avon Forum: The Avon Breast Cancer Crusade is hosting its bi-annual Forum this September in Miami, Florida. Click here to learn more about the Forum. One representative from each of the ABCC funded BHOP and Safety Net Grantees has been invited to attend.  Some of the overarching topics include:

  • Addressing Disparities in Breast Health
  • The Impact of ACA, Patient Navigation
  • Metastatic Breast Cancer
  • Updates on Technologies and Treatment
  • Overview of Avon Grantee Data Trends

The Forum will also include poster presentations, skills building workshops, self-care events, opportunities to network and more! IF YOU ARE ATTENDING THE FORUM AND WOULD LIKE TO SUBMIT A POSTER ABSTRACT, Click here.

Many thanks to all the Avon BHOP and Safety Net Grantees for the great services being providing to women in need of breast cancer education, patient navigation, screening and treatment. We are proud to be your partners!

The Avon BHOP Coordinating Center Team at CAI,

Kathy Ferris, Project Director

Abigail McCulloch, Project Officer

Kennedy Willis, Project Officer

Lindsay Senter, Director of Research and Evaluation

Karin Bauer, Research and Evaluation Consultant

Emily Leung, Research and Evaluation Associate

Kelley King, Webinar Coordinator

 

BHOP Data Evaluation 2016

DATA AND EVALUATION UPDATE

APHA Abstract Accepted:  The Avon BHOP team recently received notice that their abstract entitled, "Impact of ACA's Medicaid expansion on client demographics and breast health behaviors for medically underserved women through the Avon Breast Health Outreach Program" was selected and confirmed for the poster presentation during the APHA 2016 Annual Meeting & Expo (Oct. 29 - Nov. 2, 2016) in Denver.  The abstract was selected from a large number of excellent submittals and was judged to be of high quality and interest. Some of the data for this abstract was generated through an online ACA survey of all Avon BHOP and Safety Net Grantees conducted by the Avon BHOP Coordinating Center in April 2016.

Diagnostic Report: New in 2016!

Beginning in 2016, all Avon BHOP and Safety Net Grantees are required to report age, sex, race/ethnicity, insurance status and stage of breast cancer for all clients diagnosed with breast cancer. The purpose of this data is to learn more about the clients being reached thru the Avon-funded programs. 

Some key questions we will be looking at with this diagnostic data include:

  • Does the age of clients who access Avon BHOP programs differ from the national averages?
  • Are there younger/older clients being diagnosed with breast cancer and whose age falls outside of the screening guidelines categories?
  • Are there any racial/ethnic disparities among who is being diagnosed with breast cancer, and does it differ by age and insurance type?
  • Are Avon BHOP clients being diagnosed at earlier or later stages compared to national averages?

The answers to these questions will hopefully demonstrate the diverse communities being reached and may also illuminate trends that are occurring within particular communities that may not be seen nationally. We plan to use this data to monitor and track Grantee’s impact, present results at national conferences, and publish manuscripts that will help inform the field of breast cancer research.

Click here to get a quick peek at the 2016 first quarter diagnostic data from the Avon BHOP Grantees.

BHOP with VP

On June 29th at Howard University, Nueva Vida, a non-profit organization dedicated to assisting Latinas affected by cancer, was invited to participate in Vice President Biden's National Cancer Moonshot Summit. Dr. Laura Logie, Nueva Vida's Director of Research, will be an "ignite speaker" at the "Putting the Patient at the Center of Access and Care Taskforce."

The Moonshot Summit is a daylong conference intended to accelerate the pace of research toward curing cancer. The Summit will bring together scientists, oncologists, donors and patients and it is backed by a federal task-force created earlier in the year by President Obama. "The Moonshot cannot be achieved by one person, one organization, one discipline, or even one collective approach," Vice President Biden said.

"We are honored to participate in this historic Summit and carry the voice of Latinas with cancer. It is also a recognition of the fine work and the positive impact Nueva Vida continues to have in the community by offering a high-touch comprehensive program dedicated to providing evidence-based interventions that support Latino families during one of their most traumatic experiences," said Astrid Jimenez, Esq., Executive Director of Nueva Vida.

On April 28th, Mary Solomon of Project Renewal (a mobile mammography screening project in NYC), participated at the Moon Shot Round Table with the Vice President of the United States, Joe Biden, at Memorial Sloan Kettering Cancer Center in NYC. Mary Solomon was one of only nine speakers that was invited to speak with Vice President Biden about his mission to cure cancer in the next decade. Mary spoke on the topic of breast cancer screening and was seated right next to the VP!!

To read more and see more pictures click here.

For more on the National Cancer Moonshot Initiative click here.

BHOP Grantee Spotlight Summer 2016

Grantee Spotlights: Sucessful Outreach Strategies

This past spring our intern, Elena McKnight, worked with two of our grantees to develop the following spotlights on innovative outreach strategies. The YWCA of Binghamton has a very successful outreach program into salons and the MD Anderson Cancer Center at Cooper Hospital utilizes theater, home health parties.

To learn more about the YWCA of Binghamton’s Salon Outreach Program, click here.

To read more about the successful outreach strategies by Camden County Cancer Screening Project at MD Anderson Cancer Center at Cooper Hospital, click here.

Avon 39

Avon 39

This year, the Avon Breast Cancer Crusade invited local Avon BHOP Grantees to accept the check for all of the BHOP grants in that area. Check out these pictures of some of our BHOP grantees with the big checks!

DC Walk

Beth Beck from Breast Care for Washington (a brand new grantee this year) and the Arlington Free Clinic (a BHOP Grantee since 2002) were at the Washington, D.C. Avon 39, the Walk to End Breast Cancer on May 6-7, 2016. Click here to see Arlington Free Clinic’s staff volunteering at registration and to see pictures of Beth Beck at the DC Walk.

Chicago Walk

The Chicago Walk was held on June 4-5, 2016, the closing ceremonies were held on the Museum Campus, close to Solider Field. As usual, the ceremonies were moving and a life changing experience. One of our Illinois Avon BHOP grantees, Xilin Association, represented by June Yang accepted the big check for the Midwest grantees and our Safety Net grantees were well represented. Click here to see pictures from this event.

 Report of Interest BHOP 2016

Report of Interest

CancerCare just released their 2016 “Landmark Patient Access and Engagement Report”, a landmark cancer survey examining the emotional, financial and quality of life toll of cancer during treatment and beyond. CancerCare conducted this study to learn more about how patients experience life after a cancer diagnosis, in order to inform their program development and most accurately represent and address the needs of patients throughout their continuum of care and after treatment is complete.

"Cancer takes its toll in many ways, some of which last for years and cause debilitating distress for patients and families," explains Patricia J. Goldsmith, CancerCare Chief Executive Officer. "This report, reflecting the input of thousands of patients, sheds light on the important issues affecting patients' lives during and beyond a cancer diagnosis." Click here to learn more about the findings of the study.

CancerCare is a non-profit agency that was established in 1944. CancerCare® is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer. Our comprehensive services include counseling and support groups over the phone, online and in-person, educational workshops, publications and financial and co-payment assistance. All CancerCare services are provided by oncology social workers and world-leading cancer experts. In 2000, CancerCare began a partnership with Avon which provides limited financial assistance for breast cancer patients to help with home care, child care and transportation costs. CancerCare also provides referrals for emotional support for those impacted by cancer, funding and education.