Metastatic Breast Cancer Alliances - Inspiring Initiatives

The Metastatic Breast Cancer Alliance was formed in October 2013 by 16 non-profit organizations and 5 pharmaceutical corporations under the leadership of Dr. Marc Hurlbert of the Avon Foundation for Women. The Alliance's mission is to unify the efforts of its members to improve the lives and outcomes of those living with metastatic breast cancer (MBC) and their families. Through increasing awareness and education about the disease and advancing policy and strategy coordination of research funding specifically focused on metastasis, the Alliance has the potential to extend people's lives, enhance their quality of life, and ultimately find a cure. As its first initiative, the Alliance undertook a landscape analysis to assess gaps, duplication, and opportunities in MBC research, patient education and support services, and public awareness. The goal is to capitalize on identified opportunities, and pinpoint the ways Alliance members could work together to meet the unique needs of those living with MBC. Results of the landscape analysis were announced at a meeting hosted by the Avon Foundation on October 13, 2014 in New York City. Aspects of the MBC landscape included:
1. Scientific research, including clinical trials, focused on MBC
2. Quality of life of MBC patients and their families
3. Information and support services provided by MBC Alliance members
4. Epidemiology of MBC: challenges with population-specific statistics
5. Public awareness of MBC
There are currently 29 members including: CancerCare, Genetech, Living Beyond Breast Cancer, Metatstatic Breast Cancer Network, SHARE, Sisters Network, Susan G. Komen, Young Survival Coalition, AdvancedBC.org, BreastCancerTrials.org. Inflammatory Breast Cancer Research Foundation, Research Advocacy Network, Celgene Corporation, Novatis Oncology, Pfizer, Triple Negative Breast Cancer Foundation, Triple Negative Breast Cancer Foundation, Cancer Support Community, Dr. Susan Love Research Foundation, Sharsheret, and FORCE. You can read the entire report at: http://www.avonfoundation.org/causes/breast-cancer-crusade/mbc/mbc-alliance/
http://www.avonfoundation.org/assets/images/2014/mbca_full-report.pdf